Parkinson's North West Somerset Support Group
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Welcome to the
Parkinson's North West Somerset Support Group website
About us:
The North West Somerset Support group was set up in 1994 to help those living with Parkinson's and those caring for them in Nailsea, Backwell, Clevedon, Portishead, Yatton and the surrounding areas. Membership is free to all.
We are part of Parkinson's UK (parkinsons.org.uk), the national Parkinson's support and research charity.
Monthly General Meetings are usually held on the second Saturday of each month from 10.30am to 12.15pm. These are social gatherings, often with a speaker on a subject of interest or curiosity to be enjoyed by those living with Parkinson's, those who are caring for them, their families and friends. Tea and coffee and biscuits are served!
We hold Singalong sessions twice a month to help with loss of voice or with speech problems due to Parkinson's.
We publish a newsletter with information and news - this is available to all members. Free information leaflets about Parkinson's are available at our Saturday meetings and on request.
For more information about our local group, please call Marie on 01934 742091 or 07800 815262
See below for monthly meetings, Singalong, announcements, other information and useful contacts. Please also check nearer the date as some dates may be subject to change.
Navigating this website: e.g. get your taxi paid for ! See our transport scheme - click on the page menu at the top: Home, Ability Net, Transport Scheme, Privacy Notice. On a computer you may need to maximise the current window to get the page menu, on a smartphone you will need to click on the little three lines button at the top left to get the page menu.
NWS Parkinson's Get-togethers
These are normally held on the second Saturday of the month. Unless stated otherwise, we meet up at St Francis Church Hall, Little Meadow End, Ash Hayes Road, Nailsea, BS48 2LP.
We look forward to seeing you soon.
Saturday 10th October
10.30 am - 12.15pm
talk by Emma Shah - Speech and Language Therapist.
Advance notice: Friday 4th December 12.30pm
Christmas Lunch. Booking will be essential for this popular event.
NWS Parkinson's Singalongs
Sing along to popular songs and old-time favourites led by Jan our keyboard maestro. Helps preserve your voice. No skill required!
Singalongs are held at St Francis Church Hall, Little Meadow End, Ash Hayes Road, Nailsea, BS48 2LP
Singalongs are at 2.30 pm - 4.00 pm, and normally held on the second and fourth Tuesdays of the month. Currently these are:
Singalong Tuesday 22nd September
(Note longer than usual 3 week gap)
Singalong Tuesday 13th October
Singalong Tuesday 27th October
Singalong Tuesday 10th November
Singalong Tuesday 24th November
Games Club
NWS Parkinson's Games Club
The club meets for games, mainly for Rummikub (a cross between Gin Rummy and Mah-jong) at the Windmill pub, Portishead between 1.00 and 4.00pm.
No experience required.
Please contact Vicki on 07976 238918 to register interest or book your place. Takes place on 2nd and 4th Wednesdays of the month.
Games Club Wednesday 14th October
Games Club Wednesday 28th October
Games Club Wednesday 11th November
Games Club Wednesday 25th November
A series of YouTube videos which includes topics around speech and language therapy, as well as physiotherapy
Naveena from the Complete Care for Parkinson's team has shared a new series of YouTube videos which includes:
Ali - speech and language therapy
https://www.youtube.com/watch?v=qurxMixvQ_w
Philippa - speech and language therapist
https://www.youtube.com/watch?v=gm4vwokjuiw
Fiona - physiotherapist
https://www.youtube.com/watch?v=lYwQnHqO5TI
Gillian - occupational therapist
Power Exercise Groups
All the groups below are run totally independently of Parkinson’s UK and of the NW Somerset Support Group of Parkinson’s UK.
Exercise helps people with Parkinson's manage their symptoms.
Join one of our strongly endorsed Power Exercise Groups across North Somerset.
Feel the full value in body, mind, and wallet.
Enjoy highly-rated, Parkinson's orientated exercise coaching.
It's a great chance to socialise with like-minded folk. Our emphasis is always on fun.
There are six sessions per month at £3 per session. On Monday mornings (10-12 noon) these are held locally and on alternate Wednesdays we have sessions at the Scotch Horn leisure centre in Nailsea.
Pop in for a free taster.
For more information contact:
Stephen 07780 700528
Sue 07814 046275
Mike 07517 929352
Parkinson's Walking Football
Every Friday 10-11am at Portishead Football Club (BS20 6QG)
Fun sessions - no football experience needed.
£5 includes hot drink in the clubhouse.
Contact Nigel or just turn up:
Nigel.osmond@hotmail.co.uk
Useful Contact Numbers
General contacts:
HOME INSTEAD – Home Instead Weston-Super-Mare, Clevedon & Burnham on Sea. Quality care at home to help you live well – 01934 526892
AGE UK – Age UK Somerset enable all older people in this area to live later life to the full: Local activity groups and support sessions call 01823 345610
AMS ELECTRICAL – Handyperson service discounted for the over 50’s in partnership with North Somerset Council – 01934 520116
AVON FIRE & RESCUE SERVICE- Avon Fire home safety visit to your home to carry out a fire safety assessment and advice on how to stay safe from fire – 0117 9262061
BRITISH RED CROSS – practical and emotional support to patients to help them transition home after hospitalisation. – 0117 970 2810
MEALS ON WHEELS – North Somerset – Hot meals delivered to you ready to eat. Welfare checks and a friendly face to pop in daily – 01275 882 155
MEDFEET – Providing high quality foot health treatments in the comfort of your own home - 07525 952 297
NORTH SOMERSET LGBT+FORUM – See on Facebook. Registered charity formed to support members of the LGBT+community, their friends & families within North Somerset, including individuals overed 50+ .
Please contact the John at johnpatdevaney@gmail.com with any changes to this website that are needed.
SPECIALIST ADVICE
Parkinson's UK has a specialist adviser team who can provide information about any aspect of living with Parkinson's, managing symptoms, medication, social care, employment rights, benefits and much more. They can offer emotional support and liaise with health, social care and other local professionals to get you the support you need.
Call the Helpline on 0808 800 0303 or email hello@parkinsons.org.uk, the Helpline Advisers will deal with any general enquiries and you will be put in touch with someone in your area if more local knowledge or in depth support is needed. Advisers work mostly on the telephone but do some face to face work and visits as well.
If you haven't already, we would love you to properly join Parkinson's UK and our local support group .
To do that, please email our membership secretary on: puknwsmem@gmail.com for joining instructions.
SIRONA
The NHS PARKINSON'S SERVICE provided by SIRONA Health and Care. Tel. 0300 125 5550
Parkinson’s Nurse Specialists and Parkinson’s Specialist practitioners provide this service. Click here to look at the Sirona Parkinson's service's own website. This service is for people of all ages with a diagnosis of Parkinson’s. You must be registered with a Bristol, North Somerset or South Gloucestershire GP practice.
The Parkinson’s Service can provide information, advice and support for people with Parkinson’s and for the carers, families and healthcare professionals involved in their care. The service includes both Parkinson’s Nurse Specialists and Parkinson’s Specialist practitioners who carry out the same role.
Initial referral is via your Consultant, GP, or any other Healthcare Professional involved in your care.
Self-referral is encouraged once you are known to the service. Tel. 0300 125 5550
Newsletter
If you would like to have a look at past copies of our brief Newsround or previous Newsletter, click on the links below* or email us and we will email them to you.
Dec2023/Jan2024 Feb/March 2024 April/May 2024 June/July2024 Aug/Sept2024 Oct/Nov2024 Dec2024/Jan2025 Feb/March2025 April/May 2025 June/July2025 Aug/Sept 2025 Oct/Nov2025 Dec2025 Feb2026 March2026 April2026 May 2026 June 2026 July 2026 Aug2026 Sept 2026
*then click on menu/Download if necessary to get full view.
Useful North West Somerset Support-Group Committee Contacts:
Marie PEARSON 01934 742091 - 07800 815262 puknwscord@gmail.com
Newsletter Editor: John DEVANEY 07811 119492
johnpatdevaney@gmail.com
Finance Lead: Peter Bailey peterandheather1942@gmail.com
Finance Support: Neil Turp 07422 965598 neilturp@gmail.com
Events, Fundraising & SINGALONG: Wendy GIBB 01275 394124 prwgibb@mypostoffice.co.uk
Secretary: Vicki BREWER vbworldwide@gmail.com
Resources: Kim FORNI 07460 766706 kimnessie1@gmail.com
Committee member: Don BREWER dvbrewerworld@yahoo.co.uk
Committee member: Kevin YOUDE 01934 824400 - 07855 936762 Kevin.youde@gmail.com
Committee member: Richard (Rich) JENKINS 01275 394989 - 07854147895 richbj2@gmail.com
Retiring Membership Secretary & Website: Robert BROWN
07751 606670 - 01275 603146 (No messages) puknwsmem@gmail.com
Parkinsons UK Network Support Officer Claire DENBY 07842445020 / 02079633731 cdenby@parkinsons.org.uk
OTHER USEFUL CONTACTS:
Parkinson's UK Specialist advice - see above.
Local NHS Parkinson’s nurses / specialist practitioners (Sirona): 0300 125 5550 Sirona.parkinsons@nhs.net
Parkinson’s UK:- 0808 800 0303 parkinsons.org.uk
Parkinson's UK National membership issues:- see parkinsons.org.uk > Supporter Enquiries
Parkinson's UK Facebook:- en-gb.facebook.com/parkinsonsuk/
Parkinson's UK Twitter:- twitter.com/ParkinsonsUK
Privacy notice: See page on menu at the top.
Parkinson’s UK is the operating name of the Parkinson’s Disease Society of the United Kingdom. A company limited by guarantee. Registered in England and Wales (00948776). Registered office: Parkinson's UK, 50 Broadway, London SW1H 0DB . A charity registered in England and Wales (258197) and in Scotland (SC037554).
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